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HOW TO DONATE? |
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Donate by check to:
Special Bones
29401 Osborn Rd
Bay Village, Ohio 44140
OR
Special Bones
Huntington Bank
355 Dover Center
Bay Village, Ohio 44140
OR
PayPal
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Tax Deductible? |
Special Bones is a
501(c)(3) Non-Profit
Tax Exempt Foundation.
Please consult your tax advisor on how
to make this an eligible deductible. |
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My name
is
Mark Wagner, founder of Special Bones. I have
Osteogenesis Imperfecta (OI).
My condition is
termed as Type I OI. This
is the mildest form of the disease. My dad had it, two
of my brothers have it, five nieces and
nephews who have it, and my two children have it.
There's 11 people in my family who have it. As
far as we know, we have the most members of one
extended family who have it.
Below
are the individuals in my family who have this
disease.
Over the years, my Mom kept count of how many bones each of
her kids broke. When she died in 2000, she had my
brother Bob with 127, my brother David with 60, and me
with 85. My Mom took a lot of pictures when we were
young to document our lives every time we broke a bone.
On the back of each picture she wrote information about
the picture, such as how we broke and on what date.
There’s a lot of history in these pictures. I
am currently in the process of writing a book about my life with Brittle Bones
and how I had to cope with it, especially when your
children have the same disease you grew up with.
Click on the images below
to view Brittle Bones through the eyes of my MOM.
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